Saturday, November 13, 2010

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un'autistica seen by 13 year old sister

Cari amici bloggers e lettori di passaggio,
come promesso due mesi fa, eccomi qui a riattivare questo povero spento blog, con la recensione di un libretto, pubblicato da pochi anni, che mi è piaciuto in particolar way to its saturated fresh vein of irony, the Auric ideal attitude with which he faced and told an argument and a very unfortunate episode.

The book I am reviewing is for the true story of what happened to the family of the author, Rayneri Gaia, the daughter of two doctors Turin ASL and older sister Margaret, known affectionately Flea , which has seen fit to draw a book from the bad misfortune experienced by the whole family. And here it is: THERE FLEA ' .

PLOT
Flea is autistic. He has 9 years and not speak. E 'slow movements in and out of school for that reason, five minutes before the bell sounds: his movements slow and clumsy, could prevent the rapid flow of other pupils from the main entrance, which could also overwhelm and hurt .
E 'her mother Anita is that patients make every day, carrying a huge stuffed Panda given to her by the WWF, responded when Flea was shown to prefer it to all the other puppets who have. Along with Panda, Flea prefers sun but two other things: the cake with sesame and tamarind. The focaccia brought it to her mom from school, while the tamarind uses it for some time as the only beverage. The output from
school staged for her mother Anita is always a little 'theatrical knows that she is hiding in bidelleria sometimes in the bathroom or behind a corner, because she likes to be sought, but not that day. Even with a huge cake in the company of Panda, Flea THERE '. Mom Anita no longer finds his little school. In its place are waiting, with two faces grim, the teacher Popi, as it is called Flea, and a young teacher and severe, Gelsomina Benfield, who will communicate that the Juvenile Court, for orders over, placed on the good Margaret (woe to call fleas!) that the child had been expelled from the family to turn. Flea, in the meantime would be in a safe and secure place until things had not been clarified and it was decided how to proceed.

THE WORLD is falling apart around
When Dr. Anita Camus comes home a woman is over: he wants to die, he feels so bad, but knows how to react to that irresistible urge to vent anger kept inside until then. Find the other daughter, Jane, the eldest of 13 years, apparently to do his homework. A squabble, the phone is free ... cries and then, finally, the bomb explodes: Anita mom went to school with fleas, but without trovarla... è stata guardata in tralice dalla maestra Popi e da una tizia mai vista prima, dall'aria più simile a quella di un soldato che un'educatrice. Ma di Pulce neanche l'ombra!

Finalmente al telefono la donna riesce a sapere qualcosa: sua figlia è in una comunità sicura e protetta da chiunque le voglia far del male... ma chi in famiglia osa far del male a Pulce? L'adorano tutti. Nonostante la gravità della malattia che l'accompagna, a nessuno pesa la sua muta ma imponente presenza.
Da ciò che la dottoressa Camurati viene a sapere, dal collega dei servizi sociali torinesi, il dottor Contengo, sua figlia è stata allontanata per salvaguardare la sua incolumità... sarà, quindi, il caso di Pack a bag with medicines and clothes that, tumultuously mom adds a lot 'of things, including the recommendation that Flea does not speak, but he can speak with a particular system of communication: the' augmentative or facilitated.

Communication INCREASED (or facilitated), is an alternative method that allows autistic, unable to write, to communicate what they can not say in words, using a keyboard or drawings representing the basics everyday life such as food and the most important rooms, such as. the bathroom and his bedroom.
It is not always reliable, because of the facilitator, that is an individual who should be trusted, which will forward empathically to the patient confidence, touching lightly on the shoulder or elbow, to make him feel his presence, but which may also contaminate , with his thoughts and his attempts to guess the true message of what the autistic writes.
In this there is, however, also to add that even the person with autism is reliable ...
Read below to find out why.


Slap the Monster on Page
E 'allowed to see Margaret once a week only to Madame Camus and his daughter Joan, sister larger flea, host community happy Happy Days, a kind of prison where the graceful child is deprived of his whole world, with all its already fragile balance so precarious, or, on the other hand, understands why it was taken from school and brought there by the educator like a soldier (according to the vision of carefree Giovanna).
Where are his parents, where John, the grandparents? Where is its collection of pandas? Tamarind and its buns with sesame seeds? The keyboard to communicate with all of them? Why did they let her go there? The resentment felt by natural flea, is fully felt by mother Anita and Joanna, the only of the family who can see it ... Why? Why

on several occasions, during school hours, Flea Popi has lied to the teacher, who, knowing that the alternative augmentative communication is not reliable, nor what the autistic claim during these years of communication, and despite having heard the beginning of every school year from the same mother Anita's voice (when he went to revive the memories of our classmates Flea), does not give credit without talking to the lady, nor deeper with some expert on that type of communication , report the matter to social services, Margaret has been sexually abused in the family. The main culprit, of course, Dad is Walter!

Dr. Camus is also a well known and respected doctor from Turin ASL as his wife. All were aware of the sad situation and how much courage he and his wife had pulled out of accepting and living with a daughter's cross so serious! Possible that Dr. Camus had really abused nine-year daughter disabled? At the School of fleas, social services of the town of Turin to Juvenile Court and the Happy Days seemed so. Lawyers, and investigations are useless: the man was no longer considered to be a good dad. Far from it! It was quite a monster of perversity, a pedophile without mercy, who had taken an incest with a daughter small and, moreover, seriously disabled! Was therefore dismissed and punished in the right way.

After various vicissitudes, and even two different gynecological examinations in each of the two sisters finally the fog is vanishing: Dad Walter is not a monster. He loves his daughter deeply that not even a hair twist, just to see her happy and get it back home! The
misunderstood, and all that is derived, was due to the unreliability of the facilitator of fleas in school and that she had told lies about his father, patterns taken from somewhere and given only to attract the attention of teachers, and to feel equal to other students, which included la diversità, rispetto a sé stessa, non in grado di parlare, né di vivere normalmente come loro.
Dopo mesi, Pulce è finalmente tornata a casa, riaccolta con l'amore a dir poco soffocante della sua affettuosa quanto strampalata famiglia, a cui non pesa la sua disabilità: per essa, Pulce è una bambina normale come tutti gli altri coetanei.

UNA STORIA VERA
E' una storia vera raccontata dalla sorella Gaia, ora ventitreenne, la quale, nel romanzo, è la tredicenne Giovanna, la bislacca cicciottella adolescente, sempre avvolta in tute sportive, who lives between fictional characters and snacks bulimic swallow secretly in the dark of night, between the continuing attempts to complete a diet of mother Anita and heated discussions with his grandfather Vittorio, with some colorful word too, dad Walter, the lies (pancakes) Grandma Carmen, and foibles of the other grandmother, the family's life Camus / Rayner and processes, including high and low for years, so, until the day of misunderstanding, which ended up putting it in knee. As they say, the damage has also added insult.

FLEA THERE '
E' the first work of Joan / Gaia, so successful, that seems to be just one of many already published a long time.
The young writer, in this handsome volume, uses a language and ironic light, describing even the most tragic situations with humor that borders on the absurd. How nell'esilarante dramatic episode of the kidnapping by the Juvenile Court, in all material on Fleas, held in the house: the issue of the notice of guarantee to the father, after reading it, John, in his total innocence, ask the mother - Mom, but what it means to ejaculate? - (P. 101).

you imagine, dear friends of dooyoo, in a dramatic moment like that, a girl between the naive and “la so più lunga di voi adulti”, fare una richiesta simile ad un genitore già così provato? Due potrebbero essere le reazioni: o ridere come pazzi, istericamente, per sfogare una tensione già alle stelle, o darle due schiaffoni perchè non si ha chiaro se è o ci fa.

E che dire delle descrizioni delle educatrici, definite donna-soldato , simili a un gendarme tra i più austeri? O come quella del mondo immaginario di Giovanna, popolato da personaggi di fantasia perfino saggi, pur nell'ingenuità di ragazza, come nel caso del 'signor Kafka'?
E il tentativo di protesta del padre che, col nonno Vittorio, voleva incatenarsi per strada, pur di farsi ascoltare, per evidence that was not the monster that everyone thought? Or that the mother's preference for panties with pig drawn up, to be wearing a flea? Choice bitterly contested by her husband, who, wisely, thought it inappropriate to wear them to a child with encephalopathy connatal, always guarded, because unable to speak and vocally denounce the abuses (and abuse) may have suffered. If it had happened a few episodes of emergency, stated Dr. Camus, with a similar pair of panties, it was clear that would have raised suspicions. And the first to be considered would be just him, no father or father! Which, in fact, happened: the bad luck would have it, just the Flea day that was taken away from school, wearing his underpants with those incriminating little pig!

CURRENTLY
Now the years have passed. Flea, I learned from some interviews with Gaia / Joan, after the publication of the book, has returned home, but his family remained under observation for a long time 'after all.
His sister, after having left home, now lives in London. Just coming off, even for his own good, to be a difficult situation as a family, Gaia / Joan has had the courage to write the story, as he always wanted to do his father, who, however, has never found, because, to Just the thought of reliving everything was bad.
The tribute to Flea, the homage to the drama doubled the joke, that her parents and she herself lived, Gaia Rayneri has expressed admirably in this beautiful tribute must-read.


BRIEF Autism
From greek autos, meaning self . In medicine means a state of mind in which the subject is contained within himself losing more or less, contact with reality.
There are different types of autism, but this does not seem the place to talk about it. Rather, it seems necessary to clarify that this disorder in children, occurs with a seriously disturbed behavior, which leads them to not report to anyone, often unable to communicate verbally and, if they did, it is always in an uncoordinated fashion, repetitive and inconsistent with the ' environment around them. Except in cases of Asperger's Syndrome, the condition in which the intellect remains intact, the autistic spectrum disorder is accompanied by mental retardation and, in all cases, including Asperger's anaffettività, ie a state of emotional inertia to the participation joys and sorrows that life presents. That's why we say that the autistic person lives in a world all its own.
The autistic spectrum disorder seems originated from a virus, such as rubella and cytomegalovirus, but also an environmental toxin, which can damage the immune system.
think that only 4.5 children per 10,000 are affected by autism!

A curious fact, then, is that many of the extraordinary talents of individuals with autism show that they have. Like fleas in the book and in reality, has a fondness for classical music and an endless adoration, in particular, for Bach, who also listens for hours, so people with autism show a marked artistic or musical talent.
Unfortunately, despite this and despite all the progress that medicine is making in recent decades, The origin of the 'disease' has not yet been established, nor the most appropriate treatment has been found, nor I, that I studied only from the point of view useful to a teacher, and even support, I the preparation and the tools to make a speech more articulate about it.
What I can I suggest, dear readers, in addition to reading this novel very nice and scanzonatissimo Rayneri-reporting of Gaia, is to see a specific film launched in the early 70's.

AN EXAMPLE FILM / MUSIC
A wonderful example of what this disease there comes from the beautiful movie musical of rock-opera Tommy , music by Who , the complex English in vogue among the late '60s-early '70s, all played by Roger Daltrey, lead singer of the group, and an actress, which now I do not recollect the name, the interpretant very sensitive and thoughtful boy's mother.
This film is reversed the prevailing view of FLEA THERE ' , because here the protagonist is not a person called normal, but the real sick, that the autistic boy, che capisce tante cose, seppur in modo distorto, vorrebbe parlare, ma non riesce, pur sapendo che la madre comprende, il più delle volte, ciò che egli intendere comunicarle. Si odono, allora, i versi sublimi, a cui dà voce Roger Daltrey: << See me? Hear me? Touch me. Feel me. >>, quindi, il fiume di musica rock, bellissima e originalissima, continua accompagnando altre struggenti scene.

Tommy è uno dei primissimi esempi di cinematografia a tematica sociale: l'autismo, nei primi anni 70 non si sapeva quasi cosa fosse. E il fatto che sia stato un famoso gruppo come gli Who a scrivere la colonna sonora e ad interpretarlo, oltre ad essere uno splendido esempio of originality, has meant that the autistic disorder was finally placed under the spotlight and known to most people.
I myself, when I saw the movie on TV, although I had already heard from my mother, I was perplexed in the face of a disease so disconcerting.

soon, then, and a good read with fleas.



THERE FLEA '(Gaia Rayneri)
Edizioni Einaudi, Torino, 2009
Collection: Corals
228 pages
€ 13.60

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